Anecdotal Cures from MCS
These are Cure Stories I have cut and pasted from the internet.
I like to put up any MCS cures that people have found who experienced it personally and whose goal is to help people, not to make money from people’s illness by promising the moon and stars. If you have recovered 50% or more, please email me your story. EvesPotOfGold@gmail.com. It can be a paragraph or pages. Just give examples of what you can do now that you could not do before.
Me: I got 90-95% well by doing everything I put on this site. Mostly through supplements; sauna, coffee enema and mind/body including acupuncture, EMDR Therapy, Therapy, Restorative Yoga. Chilling out and eliminating stressful relationships. It may have been the molybdenum, one of the things I did or all. I was detoxing like crazy without getting any better for many months. I was to the point where every time I went somewhere I would get sick from a chemical. I could smell people’s laundry detergent from 6 feet away. I was getting worse and worse reactions, including asthma, muscle weakness and very serious brain fog. I could smell all of the chemicals and they all gave me a headache, nausea, tight chest Etc. I am still detoxing and healing and not completely well, I am sensitive to chemicals, but the reactions are down to occasional, but I can go places without smelling or reacting to anything! Every now and then a chemical fragrance actually smells good to me. If you have MCS, you may have not thought that possible. There was a time, I only dreamed of being somewhat ‘normal’ ~Eve
This person had her symptoms stop with LDN
http://tangos-going-ons.blogspot.com/p/dianas-ldn-story-12-18-2011.html
My Note: I have read about LDN and would probably take it if I was still sick, but I would also detox and strengthen my body and mind any way I could while taking it, because a pill stops the symptoms. I known someone who took LDN and it worked for a while and then she was back where she started. I have read that, and that’s why I don’t promote it, also because I only promote what I have done myself. But certainly, it seems to be a valuable tool!
None of these people was selling a product or promoting anything.
I don’t think anyone knows the exact cause of MCS and it may be different for different people. These are not things I have tried or investigated. Many are responses on YouTube Videos and on Message Boards.
When I have been my most ill, I scour the internet looking for hope and people that were cured. I know there are more cured people, but, like me, once you are well, you are no longer on message boards! You are out living! I have made this whole website and Facebook Page because of a relapse!
“MY MCS IS GONE”
I’ve been treated for hypercoagulation with heparin, Lyme disease and multiple coinfections, CPN, EBV, candida, and replacement of all HPA axis hormones (2 kinds of thyroid, cortisol, growth hormone, DHEA, and fludrocortisone). I also nebulize glutathione 3x per week. My MCS is gone!
PROVOCATION-NEUTRALIZATION THERAPY:
As a diagnostic tool and treatment? this has been a lifesaver for me. You can’t avoid everything…
CURED WITH A PILL
I just thought I’d write an update on my situation. I have been recovered from MCS for about a year and a half now. I had very bad MCS for about seven years. I had to sleep outside and wear organic clothes and all the rest of it. I recovered by taking an antipsychotic drug called amisulpride. I take a small dose – 100mg – everyday. Now as before I have no head for science and cant begin to explain why this works, but I can assure you my MCS was genuine and this drug cured it. I still have to take the tablet everyday, or I imagine my symptoms would return. If I forget it sometimes I’ll get a bit of a headache. The tablet has no other effect on me other than weight gain, which Is a bit of a problem but nothing compared to full blown MCS obviously. I know this is a very difficult solution for people to try out because its available only through a doctor. I have no idea whether this would work for everyone with MCS or not but I know of two other people I’ve been in contact with who this has also worked for.
Ben.
CURED LYME AND FOOD ALLERGIES Which cured MCS:
I was suffering from MCS to the point I believed my life would be destroyed from this disorder. I was unable to take the odors of many things, glue, sprays, perfumes, coffee, soaps, many other things, caused me to lose my color, feel nauseaus, and sever crippling headaches. Many doctor’s no help. Then I saw Dr. Mulders. This man turned my life around. It turns out I was in the third stage of Lyme disease and had 13 food allergies.
I’m not saying that all that have MCS might have Lyme, or allergies, but now that I’m under his treatment all my systems of MCS have disappeared.
My allergies included, eggs, banana’s, wheat and all wheat products and dairy to name a few. All these things made me feel sick, and with the Lyme it made me MCS! I have been under treatment now for about 8-months. I lived with headaches, some crippling, many times in the hospital. I thought they are where caused by my daily contact with Chemicals.
But I have not had a headache, or felt sick in about 6 months; I don’t think I have ever felt better in the last 20 years (I’m 42 Years Old). I have been in hospitals since 1978 for Lyme symptoms, and have been in hospitals maybe 25 times for MCS symptoms, but always there was no diagnoses, except for I’m mentally nuts. Tried to put me on all types of pills, (I never took any of them) knew I wasn’t nuts.
I would like to say to Dr. Mulders THANK YOU!!! You saved my life!!! The Lyme had gotten so bad I was going into shaking fits, lose of memory and body control.
A General Practitioner told me I need mind drugs, or hormons, and prescribed mind altering drugs. A Neurologist told me I needed therapy and prescribed pills. A Allergist told me it is all in my head, and recommended therapy! WOW! I knew something was going wrong and that all those doctors where WRONG. Not one of them would speak to me after I was diagnosed with Lyme.
If you have problems doctors don’t seem to be able to help you with, please take a moment to call Dr. Mulders @ 610-725-9996
If you have question or would like to speak to me you can call 215-742-6542 or email me at ideal@uscubes.com.
Help this helps someone.
Mike
COMPLETE INSTANT RECOVERY AFTER AMALGAM REMOVAL:
(My Disclaimer, while many people say it helps and in my case I believe it was majorly helpful, many people do not get relief) it has been more than 60 days since I recovered from Severe Multiple Chemical Sensitivities, an illness that I previously lived with for more than 20 years. I want to share my story in the hopes that possibly someone else with this dreadful condition might find some information that will lead to their own recovery. I am pretty sure that not all cases of MCS are the same, but never did I (or any doctor/allergist that I saw for that matter) consider in the 20 years of my illness that electricity generated by my fillings was the cause; and once removed the symptoms of MCS disappeared immediately. Up until March of this year, I (and my allergist) were convinced that an episode of carbon monoxide poisoning at the age of 14 made me allergic to the modern world.
First of all, a more complete version of my symptoms, attempts at treatment, and recovery can be found here:
Click to access Matt_Rixen_Case_History.pdf
Most of my allergy symptoms were a result of exposure to anything with a phenol, ethanol, petroleum, or formaldehyde component. But the list includes most synthetic materials with a smell and many chemicals that I have never identified but nevertheless caused pretty severe reactions. Mold (both indoor and outdoor) also generated very similar symptoms.
As far as symptoms, I was a pretty bad case. Even a few minutes inside a store, house, or other building would generate headaches/fatigue/emotional issues of varying intensity depending on how many minutes or hours I stayed. Symptoms would persist from hours or days afterwards depending on the chemical and exposure time (usually anything over 3 minutes). I had a 100% failure rate for buildings other than my own specially renovated or constructed home(s), and even that was only true in the summer months when the windows could be open most of the time. Winters until 2006 were about 4-6 months of pain and suffering from which I am now very surprised that I did not commit suicide due to the pain and lack of sleep. Not having an accurate idea of what health truly was I think saved me from doing anything drastic.
One key aspect of my case was the ability to ‘smell’ or ‘feel’ what I was allergic to simply by being exposed to it. Prior to recovery, I was sensitive enough to smell a pilot light in a house just by walking in the front door. I could tell if an object or compound had things I was sensitive to simply by smelling and/or touching it. Being in a environment with chemicals I was reacting to, I could differentiate between various compounds in materials such as carpeting, upholstery, detergents, cleaning chemicals and computers that were turned on in another room either by smelling their presence or feeling their immediate effects on my health. Part of the shock of recovery is the inability to sense these things any longer, and having a hard time smelling even extremely strong scented compounds such as gasoline and similar.
Most of my life from the age of 14 has been defined by trying to live with MCS, find ways to work around it, and the attempts to live through the fog of pain that it caused. Long years of trial and error in house renovation and new house construction, and trying to find any kind of employment to generate income. The more I pushed myself in regards to going places that would make me sick, the worse my reactions to the chemicals/mold would get. I got very good at acting ‘healthy and normal’ so as to put people around me at ease. It seems to be in the nature of humans to want to try to do something for you or blame themselves for your pain if you are showing signs of illness. So to avoid this I did not talk about my illness and even in pain I would try to act normal and ignore it as much as possible in social situations. The best treatment for symptoms seemed to be long walks in the woods.
In March of this year I came across information about the dangers of mercury fillings (watching the move “The Beautiful Truth”) and resolved to get my fillings removed. While searching for dentists in my area who believed in the importance of amalgam removal and would do the procedure safely, I came across the story of Dr. Lisa Nagy, which you can read for yourself here:
http://www.icimed.com/doctor_of_month_lisa_nagy.php
I came across her story on kingtooth.com and read her account. She also had Multiple Chemical Sensitivities, and she completely recovered once her fillings and crowns generating microamps of electricity were removed. This condition where metal fillings or metal crowns generate small amounts of electricity is called ‘Oral Galvanism”, which Dr. Nagy has found can cause many other symptoms, ranging from electrical sensitivity to mental illness (which were cured once the fillings/crowns were removed). I immediately resolved to make an appointment to see if I had a similar problem.
When I finally got into the dentist chair and was measured, I had a total of 84 microamps from all my fillings and my single crown. One tooth on a lower right molar had two fillings, one giving off 66 microamps, the other 10 microamps. The front crown was giving off 6 microamps, while two other fillings on the upper right were giving off 1 microamp each. I recently read a paper on oral galvanism that stated “A clinic with considerable experience dealing with problems of oral galvanism found that currents over 5 microamps usually cause significant health problems such as headaches, migraines, dizzyness, nausea,etc. which was eliminated when amalgam fillings were replaced. The central nervous system operates on signals in the range of nano-amps, which is 1000 times less than a micro amp(38)\” (link below)
http://www.flcv.com/galv.html
So my central nervous system (which governs the immune system) was dealing with an incredible electrical load, many thousands of times greater than it was capable of generating itself. At the time, I only dared hope for a 25% reduction in symptoms, having been inured by a long history of disappointment in attempts to treat my MCS. I am still in a state of shock from the results.
In late May of this year, I was able to finally get the fillings with the strongest charge out. The moment my fillings in the tooth with the 66 and 10 microamp fillings were removed, the muscles around my spine below my shoulder blades relaxed as if they had been tight as a clenched fist prior to this. All the muscles in my body took turns trembling, and I began to sweat. It was not until after I stood up after getting the filling replaced with a plastic one that I realized that I could no longer smell the carpeting, computers, cleaning chemicals, or ventilation molds in the dentists office. I felt light and happy, the best since I was a child. It was a test of will not to break down crying right there out of sheer relief and joy. All feelings of sickness from being in their building disappeared and I left there feeling the best I had for the 20 years prior.
I have been testing myself rigorously since then in an attempt to locate anything that I might be allergic to. Going to restaurants, movies, the hospital, using and smelling chemicals of all kinds from cleaners to gasoline to new carpeting. It took my wife several weeks to stop asking me ‘are you sure you are not sick?’. Nothing so far has caused anything more than a slight light-headedness that dissipated in a few minutes (gasoline). I am living a completely different life and it is so very good.
The purpose of this it to hopefully help people who may be unknowingly suffering from oral galvanism which is causing MCS. The test for electricity coming off of the fillings is very simple, kind of like a sophisticated volt meter. Removal of the fillings and replacement with plastic fillings was more complicated due to the extreme toxicity of mercury. They used a dental dam (rubber) stretched across the mouth and a specialized high-flow vacuum to suck any dust and fillings out of the mouth and ionize them as they were drilling/cutting. I am unclear on the technical details of the operation, so it would be better to ask someone qualified or do a search. What is clear is that removal of the fillings without proper precautions may result in mercury poisoning and/or a negative health event.
If you live in or near the Minneapolis/St. Paul area, I saw Dr. Pham/Dr. King in St. Louis park and the whole experience of working with their office was a pleasure. Each filling (per tooth) in my case was 150-225$ for removal. I had my front crown/root canaled tooth extracted for about 300$. My dental insurance (Delta) covered about 50% of the filling replacements and most of the crown extraction. Dr. King’s website has much more information.
http://www.kingtooth.com/
Many of my relatives have been asking their dentists out of curiosity about their knowledge of oral galvanism and it’s effects. Several have told me that their dentists are aware that some people have sensitivity to amalgam fillings and have negative health effects, and there is ample anecdotal evidence to suggest that the removal of those fillings contributed to improved health, but they do not go out of their way to identify or diagnose any problems though. There seems to be a number of dentists out there who believe in amalgam-free dentistry, and the importance of removal of existing metal from the mouth. I used plastic fillings to replace the mercury fillings, and requested a mixture that had the least amount of bisphenol-A (BPA) in it. I wanted to avoid placing too much of an known endocrine disruptor back into my tooth and possibly generate more problems.
This post is getting pretty long, and it’s late. Hope it helps and I will try to be back to answer questions when I remember to .
Matt Rixen
TOXIC MOLD
**I have MCS as well, after many years I finally found a doctor who was willing to look at every possible avenue. She eventually found I have multiple ricketsial strains, such as Q-fever in my system in their chronic form causing the MCS. So please, if you have MCS ask your doctor to test you for ricketsial micro plasmas. I’m not better yet, but there is treatment for the microplasmas.
**i have mcs. and i would recommend cleaning ll that junk out of her house, including all that rusty stuff. also sunglasses ruin your adrenal glands. why? because sunlight activates your insides and depriving yourself of natural light you get severely sick. i used to wear sunglasses ALL THE TIME before i got mcs, even when they werent necessary.
**This is happening to me right now I am 14 and have been extremely ill for the past 6 or 7 months II have had MANY test, I have seen many doctor, I have also had many ER visits. So after all these test I ask my step dad and mom if we could get a mold inspector and they both agreed so we got the mold inspector and they though we had no very toxic mold so they did the test needed. And guess what they said we have 3 VERY toxic molds in are bathroom that are now air born. So we are moving in 3 days
Neurontin and Effexor
I’ve had MCS since 1978.
I’ve tried just about every theory that has come along. Just imagine how much money I could waste in 31 years! Bottom line?
MCS is a consequence of brain damage caused by a toxic exposure. In my case it was a massive overexposure to freon (a cloro/flourinated hydrocarbon).
Symptoms are caused by brain dysfunction, especially neuronal storms (kindling). The only “solution” is to reduce the errant neuronal firing. In my case, that was accomplished with a combination of Neurontin (gabapentin) and Effexor. That is the ONLY thing that has ever worked for me, and it worked quite well. I went from not being able to do anything, to being able to paint my house. But the side effects are rather unpleasant given the extremely high doses of Neurontin that are required (way beyond the max on the datasheet).
This treatment is based on a book called Betrayal by the Brain. The author is no longer practicing medicine. Nor is the doctor that treated me (Seastrunk).
Since you are a newbie, my advice to you would be to make sure you don’t also end up with electro-sensitivity. Be careful with cellphones, and such.
CHEMICAL FREE LIFESTYLE:
Debra Lynn Dadd developed MCS from being exposed repeatedly to toxic chemicals throughout her life. Over several years, she got ill and figured out she had MCS and that chemical exposures were causing her to be ill. She slowly adopted a chemical-free lifestyle and created a living environment that allowed her to heal. Now she has recovered and runs a website to support others in living chemical free. She has also written a book, Home Safe Home, which is one of the best resources around for cutting your toxic exposures from everyday household products.
Debra was the first person I discovered who had recovered. I was thrilled—it IS possible to get rid of MCS! Her website and book became a huge resource for me. I knew I was sensitive to fragrances but didn’t realize how many non-perfumed household items were adding to my sensitivities. I’ve used her website to help find clothes, bedding, and housing that don’t trigger my sensitivities. Finding Debra was definitely a breakthrough for me. It allowed me to set up my life so I could still function with chemical sensitivities and keep myself from getting worse. Go check out her story and her awesome website:
Cured CANDIDA CURED MCS SYMPTOMS:
http://candidarecovery.com/mystory.htm
IF MY PAGE HAS HELPED YOU, PLEASE CONSIDER A DONATION! So far, this has been a labor of love. With more resources, I can greatly improve this website! ~ Eve[donateplus]