I called the American Lung Association a few weeks ago, because MCS has really affected my lungs. I had one asthma attack two years ago, and came close to having a few more back then. I and cough and sometimes my lungs hurt. They are much better now, but not
back to pre MCS. I ride my bike, teach cardio dance and am very partial to my lungs. The doctors I have seen are not at all concerned, but I am. They are always saying how healthy I am; I suppose you have to be in the last stages of something to get attention!
I got a pamphlet from the ALA saying to call if I had any questions about lung health, so I did. I have learned to never mention Chemical Sensitivity to a doctor. Either they instantly think I am crazy, they feel inadequate for not knowing and treat me like I am crazy or some undesirable thing transpires. So, I just tell them my symptoms, my lungs hurt sometimes when I am around air fresheners, Teflon, candles etc.
For the first time ever, the nurse says “maybe it’s Multiple Chemical Sensitivity”, I will send you some info. This was amazing to me that such a large organization does not keep the ‘black out’ on MCS info and discussion.
My package came in about 2 weeks and has great articles all full of great info and even mentioning Electro Magnetic Field Sensitivity. It was 3 reports, about 30 pages. The bad news is that the ALA’s name is not on any document, just on the envelope it came in. It was all info downloaded from the internet. I was hoping to have something official that we could all have a copy of as ‘proof’ that we have a real illness. I still think its pretty great and we can take the package in to our doctor, or get extra packets to give away to our bosses, loved ones and doctors. I think the American Lung Association envelope is important for credence.
I did talk to the nurse for a while about my lungs and she didn’t seem too worried either. She seemed to think it was like a bruise that will go away and be fine again. I don’t really feel this is true. It disturbs me that my lungs are so sensitive. { After researching on my own, I think its related to chronic inflammation. Obviously, there has been a change in their functionality. They are frail. I don’t like that and have been looking into things that heal the lungs. They are much better and I don’t cough so much anymore. I am taking Mullien at the moment. http://hollirichey.com/2010/06/22/magnificent-mullein-a-friend-to-those-with-lung-issues/}
All of the articles from the ALA are downloaded from the internet. However, the one article I read was really good. I actually learned a few things. I think anyone with MCS should have this package for showing to doctors etc.
Their number is 1-800 LUNGUSA
These are the articles in the packet
http://www.aehf.com/articles/treatment_options_mcs.html
http://aafp.org/afp/1998/0901/p721.html?printable=afp
http://www.webmd.com/allergies/multiple-chemical-sensitivity?print=true